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Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and Meta-Analysis

Journal of the American Heart Association, 2021-03, Vol.10 (6), p.e019552-e019552

2021

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Definitions, instruments and correlates of patient empowerment: A descriptive review

Patient education and counseling, 2022-02, Vol.105 (2), p.346-355

2022

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Forty years of quality-of-life research in congenital heart disease: Temporal trends in conceptual and methodological rigor

International journal of cardiology, 2015-09, Vol.195, p.1-6

2015

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Mechanisms of impact and experiences of a person-centred transition programme for adolescents with CHD: the Stepstones project

BMC health services research, 2021-06, Vol.21 (1), p.573-573, Article 573

2021

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When face-to-face interviews are not possible: tips and tricks for video, telephone, online chat, and email interviews in qualitative research

European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology, 2021-05, Vol.20 (4), p.392

2021

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Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components

BMC health services research, 2021-12, Vol.21 (1), p.1343-1343, Article 1343

2021

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Factors affecting adolescents' participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES project

BMC medical research methodology, 2020-08, Vol.20 (1), p.205-205, Article 205

2020

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Implementation fidelity of a transition program for adolescents with congenital heart disease: the STEPSTONES project

BMC health services research, 2022-02, Vol.22 (1), p.153-153, Article 153

2022

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Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale (GYPES)

PloS one, 2018-07, Vol.13 (7), p.e0201007-e0201007

2018

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Qualitative study of facilitators and barriers for continued follow-up care as perceived and experienced by young people with congenital heart disease in Sweden

BMJ open, 2021-10, Vol.11 (10), p.e049556-e049556

2021

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Parental uncertainty about transferring their adolescent with congenital heart disease to adult care

Journal of advanced nursing, 2019-02, Vol.75 (2), p.380-387

2019

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Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-method process evaluation study (the STEPSTONES project)

BMJ open, 2019-08, Vol.9 (8), p.e028229-e028229

2019

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Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based survey

BMC health services research, 2017-04, Vol.17 (1), p.260-260, Article 260

2017

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New kid on the block? Community nurses' experiences of caring for sick children at home

Journal of clinical nursing, 2015-09, Vol.24 (17-18), p.2448-2457

2015

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Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to Adulthood

Journal of adolescent health, 2015-12, Vol.57 (6), p.658-665

2015

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Patient empowerment and its correlates in young persons with congenital heart disease

European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology, 2019-06, Vol.18 (5), p.389-398

2019

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Self-Perceived Health Status and Sense of Coherence in Children With Type 1 Diabetes in the West Bank, Palestine

Journal of transcultural nursing, 2020-03, Vol.31 (2), p.153-161

2020

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Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

Journal of family nursing, 2018-11, Vol.24 (4), p.585-611

2018

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Development and psychometric evaluation of TEXP-Q: a questionnaire measuring transition and transfer experiences in emerging adults with type 1 diabetes

Journal of patient-reported outcomes, 2023-11, Vol.7 (1), p.111-111, Article 111

2023

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Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents

Journal of family nursing, 2019-08, Vol.25 (3), p.447-468

2019

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Electrocardiographic amplitudes: a new risk factor for sudden death in hypertrophic cardiomyopathy

European heart journal, 2010-02, Vol.31 (4), p.439-449

2010

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Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the

European heart journal, 2021-11, Vol.42 (41), p.4213-4223

2021

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The Scope of Research on Transfer and Transition in Young Persons With Chronic Conditions

Journal of adolescent health, 2019-11, Vol.65 (5), p.581-589

2019

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Response to the Letter to the editor by Shoar et al. on outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart disease

International journal of cardiology, 2020-08, Vol.312, p.63-63

2020

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Quality of life in asymptomatic children and adolescents before and after diagnosis of hypertrophic cardiomyopathy through family screening

Journal of clinical nursing, 2013-01, Vol.22 (1-2), p.211-221

2013

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Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and Meta-Analysis

Definitions, instruments and correlates of patient empowerment: A descriptive review

Forty years of quality-of-life research in congenital heart disease: Temporal trends in conceptual and methodological rigor

Mechanisms of impact and experiences of a person-centred transition programme for adolescents with CHD: the Stepstones project

When face-to-face interviews are not possible: tips and tricks for video, telephone, online chat, and email interviews in qualitative research

Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components

Factors affecting adolescents' participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES project

Implementation fidelity of a transition program for adolescents with congenital heart disease: the STEPSTONES project

Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale (GYPES)

Qualitative study of facilitators and barriers for continued follow-up care as perceived and experienced by young people with congenital heart disease in Sweden

Parental uncertainty about transferring their adolescent with congenital heart disease to adult care

Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-method process evaluation study (the STEPSTONES project)

Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based survey

New kid on the block? Community nurses' experiences of caring for sick children at home

Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to Adulthood

Patient empowerment and its correlates in young persons with congenital heart disease

Self-Perceived Health Status and Sense of Coherence in Children With Type 1 Diabetes in the West Bank, Palestine

Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine

Development and psychometric evaluation of TEXP-Q: a questionnaire measuring transition and transfer experiences in emerging adults with type 1 diabetes

Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents

Electrocardiographic amplitudes: a new risk factor for sudden death in hypertrophic cardiomyopathy

The Scope of Research on Transfer and Transition in Young Persons With Chronic Conditions

Response to the Letter to the editor by Shoar et al. on outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart disease

Quality of life in asymptomatic children and adolescents before and after diagnosis of hypertrophic cardiomyopathy through family screening

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