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Disparities in Pediatric Palliative Care: Where Are We and Where Do We Go from Here?

The Journal of pediatrics, 2024-12, Vol.275, p.114194, Article 114194

2024

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Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care

Journal of pain and symptom management, 2024-07

2024

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Pediatric Palliative Care Parents’ Distress, Financial Difficulty, and Child Symptoms

Journal of pain and symptom management, 2022-02, Vol.63 (2), p.271-282

2022

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What Do Parents Value Regarding Pediatric Palliative and Hospice Care in the Home Setting?

Journal of pain and symptom management, 2021-01, Vol.61 (1), p.12-23

2021

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The Home-Based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of Psychometric Properties

Journal of pain and symptom management, 2024-06

2024

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Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

BMC palliative care, 2021-01, Vol.20 (1), p.17-17, Article 17

2021

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Hope in the context of life-threatening illness and the end of life

Current opinion in psychology, 2023-02, Vol.49, p.101513, Article 101513

2023

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The Design of a Data Management System for a Multicenter Palliative Care Cohort Study

Journal of pain and symptom management, 2022-07, Vol.64 (1), p.e53-e60

2022

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Factors Associated With the Use of U.S. Community–Based Palliative Care for Children With Life-Limiting or Life-Threatening Illnesses and Their Families: An Integrative Review

Journal of pain and symptom management, 2018-01, Vol.55 (1), p.117-131

2018

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Measuring Pediatric Palliative Care Quality: Challenges and Opportunities

Journal of pain and symptom management, 2023-05, Vol.65 (5), p.e483-e495

2023

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Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications

Children (Basel), 2022-07, Vol.9 (8), p.1115

2022

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Association Between Children With Life-Threatening Conditions and Their Parents' and Siblings' Mental and Physical Health

JAMA network open, 2021-12, Vol.4 (12), p.e2137250-e2137250

2021

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Parent Priorities in End-of-Life Care for Children With Cancer

JAMA network open, 2023-05, Vol.6 (5), p.e2313503-e2313503

2023

Volltextzugriff (PDF)

Experiences of African American Parents Following Perinatal or Pediatric Death: A Literature Review

Death studies, 2014-07, Vol.38 (6), p.374-380

2014

Volltextzugriff (PDF)

The 2023-2026 Hospice and Palliative Nurses Association Research Agenda

Journal of hospice and palliative nursing, 2023-04, Vol.25 (2), p.55

2023

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Nebulized medications for the treatment of dyspnea: a literature review

Journal of aerosol medicine and pulmonary drug delivery, 2015-02, Vol.28 (1), p.1

2015

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Implementation challenges in end-of-life research with adults with intellectual and developmental disabilities

Applied nursing research, 2015-05, Vol.28 (2), p.202-205

2015

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A Hospice Rotation for Military Medical Residents: A Mixed Methods, Multi-Perspective Program Evaluation

Journal of palliative medicine, 2016-05, Vol.19 (5), p.542

2016

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A Hospice and Palliative Rotation for Military Medical Residents: A Mixed Methods, Multistakeholder Perspective Program Evaluation (S711)

Journal of pain and symptom management, 2014-02, Vol.47 (2), p.471-472

2014

Volltextzugriff (PDF)

Good Days, Bad Days: A Cognitive Interview-Based Approach for Eliciting Parents’ Perspectives on Experiences with Pediatric Palliative and Hospice Care (S547)

Journal of pain and symptom management, 2022-05, Vol.63 (5), p.931-932

2022

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Symptom Trajectories and Mortality Among Children Receiving Palliative Care: A Prospective Cohort Study (RP200)

Journal of pain and symptom management, 2024-05, Vol.67 (5), p.e798-e798

2024

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Parent Priorities in End-of-Life Care for Children with Cancer (CO202C)

Journal of pain and symptom management, 2022-06, Vol.63 (6), p.1064

2022

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Goals of Care Rated by Parents of Children Receiving Pediatric Palliative Care: A Cohort Study Over Two Years (RP409)

Journal of pain and symptom management, 2022-06, Vol.63 (6), p.1087

2022

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Parent Priorities in End-of-Life Care for Children with Cancer

Journal of pain and symptom management, 2022-05, Vol.63 (5), p.885-885

2022

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Pediatric Palliative and Hospice Care at Home: Development of a Measure of Family-Reported Experiences

Boyden, Jackelyn Y

2020

Volltextzugriff (PDF)

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Disparities in Pediatric Palliative Care: Where Are We and Where Do We Go from Here?

Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care

Pediatric Palliative Care Parents’ Distress, Financial Difficulty, and Child Symptoms

What Do Parents Value Regarding Pediatric Palliative and Hospice Care in the Home Setting?

The Home-Based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of Psychometric Properties

Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

Hope in the context of life-threatening illness and the end of life

The Design of a Data Management System for a Multicenter Palliative Care Cohort Study

Factors Associated With the Use of U.S. Community–Based Palliative Care for Children With Life-Limiting or Life-Threatening Illnesses and Their Families: An Integrative Review

Measuring Pediatric Palliative Care Quality: Challenges and Opportunities

Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications

Association Between Children With Life-Threatening Conditions and Their Parents' and Siblings' Mental and Physical Health

Parent Priorities in End-of-Life Care for Children With Cancer

Experiences of African American Parents Following Perinatal or Pediatric Death: A Literature Review

The 2023-2026 Hospice and Palliative Nurses Association Research Agenda

Nebulized medications for the treatment of dyspnea: a literature review

Implementation challenges in end-of-life research with adults with intellectual and developmental disabilities

A Hospice Rotation for Military Medical Residents: A Mixed Methods, Multi-Perspective Program Evaluation

A Hospice and Palliative Rotation for Military Medical Residents: A Mixed Methods, Multistakeholder Perspective Program Evaluation (S711)

Good Days, Bad Days: A Cognitive Interview-Based Approach for Eliciting Parents’ Perspectives on Experiences with Pediatric Palliative and Hospice Care (S547)

Symptom Trajectories and Mortality Among Children Receiving Palliative Care: A Prospective Cohort Study (RP200)

Parent Priorities in End-of-Life Care for Children with Cancer (CO202C)

Goals of Care Rated by Parents of Children Receiving Pediatric Palliative Care: A Cohort Study Over Two Years (RP409)

Parent Priorities in End-of-Life Care for Children with Cancer

Pediatric Palliative and Hospice Care at Home: Development of a Measure of Family-Reported Experiences

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