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Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

PLoS computational biology, 2012, Vol.8 (7), p.e1002549-e1002549

2012

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Polygenic susceptibility to breast cancer and implications for prevention

Nature genetics, 2002-05, Vol.31 (1), p.33-36

2002

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Funders must encourage scientists to share

Nature (London), 2015-06, Vol.522 (7555), p.129-129

Bobrow, Martin

2015

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Public access to genome-wide data: five views on balancing research with privacy and protection

PLoS genetics, 2009-10, Vol.5 (10), p.e1000665-e1000665

2009

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What is "data sharing" and why should biomedical researchers embrace it?

Transplantation, 2015-04, Vol.99 (4), p.654-655

Bobrow, Martin

2015

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Managing clinically significant findings in research: the UK10K example

European journal of human genetics : EJHG, 2014-01, Vol.22 (9), p.1100-1104

2014

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Balancing privacy with public benefit

Nature (London), 2013-08, Vol.500 (7461), p.123-123

Bobrow, Martin

2013

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Funders must encourage scientists to share: to realize the full potential of large data sets, researchers must agree on better ways to pass data around

Nature (London), 2015-06, Vol.522 (7555), p.129

Bobrow, Martin

2015

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Psychological impact of genetic testing for familial hypercholesterolemia within a previously aware population: A randomized controlled trial

American journal of medical genetics. Part A, 2004-07, Vol.128A (3), p.285-293

2004

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Regulate research at the animal–human interface

Nature (London), 2011-07, Vol.475 (7357), p.448-448

Bobrow, Martin

2011

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Balancing privacy with public benefit: maximizing access to research data will greatly benefit science, and users can help to establish universal principles on how to do it

Nature (London), 2013-08, Vol.500 (7461), p.123

Bobrow, Martin

2013

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The gene involved in X-linked agammaglobulinaemia is a member of the src family of protein-tyrosine kinases

Nature (London), 1993-01, Vol.361 (6409), p.226-233

1993

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The UK10K project identifies rare variants in health and disease

Nature (London), 2015-10, Vol.526 (7571), p.82-90

2015

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Regulate research at the animal-human interface: the time is right, says Martin Bobrow, to improve the governance of research involving animals that contain human genetic or cellular material

Nature (London), 2011-07, Vol.475 (7357), p.448

Bobrow, Martin

2011

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Improved imputation of low-frequency and rare variants using the UK10K haplotype reference panel

Nature communications, 2015-09, Vol.6 (1), p.8111-8111, Article 8111

2015

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Victor McKusick and his role in the founding of the European School of Genetic Medicine

American journal of medical genetics. Part A, 2021-11, Vol.185 (11), p.3253-3258

2021

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Consent recommendations for research and international data sharing involving persons with dementia

Alzheimer's & dementia, 2018-10, Vol.14 (10), p.1334-1343

2018

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Ethics review for international data-intensive research

Science (American Association for the Advancement of Science), 2016-03, Vol.351 (6280), p.1399-1400

2016

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Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium

Nature genetics, 2016-03, Vol.48 (3), p.224-225

2016

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RESEARCH ETHICS. Ethics review for international data-intensive research

Science (American Association for the Advancement of Science), 2016-03, Vol.351 (6280), p.1399-1400

2016

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Genomic cloud computing: legal and ethical points to consider

European journal of human genetics : EJHG, 2015-10, Vol.23 (10), p.1271-1278

2015

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Data Safe Havens in health research and healthcare

Bioinformatics, 2015-10, Vol.31 (20), p.3241-3248

2015

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Whole-genome sequence-based analysis of thyroid function

Nature communications, 2015-03, Vol.6 (1), p.5681-5681, Article 5681

2015

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Exon Structure of the Human Dystrophin Gene

Genomics (San Diego, Calif.), 1993-05, Vol.16 (2), p.536-538

1993

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Managing clinically significant findings in research: the UK10K example

European journal of human genetics : EJHG, 2014-09, Vol.22 (9), p.1100-1104

2014

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Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

Polygenic susceptibility to breast cancer and implications for prevention

Funders must encourage scientists to share

Public access to genome-wide data: five views on balancing research with privacy and protection

What is "data sharing" and why should biomedical researchers embrace it?

Managing clinically significant findings in research: the UK10K example

Balancing privacy with public benefit

Funders must encourage scientists to share: to realize the full potential of large data sets, researchers must agree on better ways to pass data around

Psychological impact of genetic testing for familial hypercholesterolemia within a previously aware population: A randomized controlled trial

Regulate research at the animal–human interface

Balancing privacy with public benefit: maximizing access to research data will greatly benefit science, and users can help to establish universal principles on how to do it

The gene involved in X-linked agammaglobulinaemia is a member of the src family of protein-tyrosine kinases

The UK10K project identifies rare variants in health and disease

Regulate research at the animal-human interface: the time is right, says Martin Bobrow, to improve the governance of research involving animals that contain human genetic or cellular material

Improved imputation of low-frequency and rare variants using the UK10K haplotype reference panel

Victor McKusick and his role in the founding of the European School of Genetic Medicine

Consent recommendations for research and international data sharing involving persons with dementia

Ethics review for international data-intensive research

Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium

RESEARCH ETHICS. Ethics review for international data-intensive research

Genomic cloud computing: legal and ethical points to consider

Data Safe Havens in health research and healthcare

Whole-genome sequence-based analysis of thyroid function

Exon Structure of the Human Dystrophin Gene

Managing clinically significant findings in research: the UK10K example

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