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Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study

Health and quality of life outcomes, 2014-04, Vol.12 (1), p.54-54

2014

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The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2018-07, Vol.19 (5-6), p.351-361

2018

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Using telehealth in motor neuron disease to increase access to specialist multidisciplinary care: a UK-based pilot and feasibility study

BMJ open, 2019-10, Vol.9 (10), p.e028525

2019

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Using technology to improve access to specialist care in amyotrophic lateral sclerosis: A systematic review

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.313-324

2016

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Evaluating a grant development public involvement funding scheme: a qualitative document analysis

Research involvement and engagement, 2024-06, Vol.10 (1), p.57-57

2024

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DiPALS: Diaphragm Pacing in patients with Amyotrophic Lateral Sclerosis - a randomised controlled trial

Health technology assessment (Winchester, England), 2016-06, Vol.20 (45), p.1-186

2016

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The impact of gastrostomy in motor neurone disease: challenges and benefits from a patient and carer perspective

BMJ supportive & palliative care, 2016-03, Vol.6 (1), p.52-59

2016

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The use of non-invasive ventilation at end of life in patients with motor neurone disease: A qualitative exploration of family carer and health professional experiences

Palliative medicine, 2013-06, Vol.27 (6), p.516-523

2013

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Factors influencing decision-making in relation to timing of gastrostomy insertion in patients with motor neurone disease

BMJ supportive & palliative care, 2014-03, Vol.4 (1), p.57-63

2014

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Protocol for a cluster randomised controlled trial of the DAFNEplus (Dose Adjustment For Normal Eating) intervention compared with 5x1 DAFNE: a lifelong approach to promote effective self-management in adults with type 1 diabetes

BMJ open, 2021-01, Vol.11 (1), p.e040438-e040438

2021

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Use of the h-index to measure the quality of the output of health services researchers

Journal of health services research & policy, 2014-04, Vol.19 (2), p.102-109

2014

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The impact on the family carer of motor neurone disease and intervention with noninvasive ventilation

Journal of palliative medicine, 2013-12, Vol.16 (12), p.1602-1609

2013

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The initiation of non-invasive ventilation for patients with motor neuron disease: Patient and carer perceptions of obstacles and outcomes

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2013-03, Vol.14 (2), p.105-110

2013

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Protocol for diaphragm pacing in patients with respiratory muscle weakness due to motor neurone disease (DiPALS): a randomised controlled trial

BMC neurology, 2012-08, Vol.12 (1), p.74-74, Article 74

2012

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Public involvement at the design stage of primary health research: A narrative review of case examples

Health policy (Amsterdam), 2010-04, Vol.95 (1), p.10-23

2010

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Public involvement in the design and conduct of clinical trials: a narrative review of case examples

Trials, 2011-12, Vol.12 (S1), p.A82-A82, Article A82

2011

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Use of non-invasive ventilation at end of life

Palliative medicine, 2013-10, Vol.27 (9), p.878-878

2013

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Public involvement in the systematic review process in health and social care: A narrative review of case examples

Health policy (Amsterdam), 2011-10, Vol.102 (2), p.105-116

2011

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Patient perceptions of the referral of older adults to an epilepsy clinic: Do patients and professionals agree who should be referred to a specialist?

Epilepsy & behavior, 2014-05, Vol.34, p.120-123

2014

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Health care professionals’ views on psychological factors affecting nutritional behaviour in people with motor neuron disease: A thematic analysis

British journal of health psychology, 2019-11, Vol.24 (4), p.953-969

2019

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Safety and efficacy of diaphragm pacing in patients with respiratory insufficiency due to amyotrophic lateral sclerosis (DiPALS): a multicentre, open-label, randomised controlled trial

Lancet neurology, 2015-09, Vol.14 (9), p.883-892

Anon

2015

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Conducting qualitative research within Clinical Trials Units: Avoiding potential pitfalls

Contemporary clinical trials, 2014-07, Vol.38 (2), p.338-343

2014

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Disadvantaged former miners’ perspectives on smoking cessation: A qualitative study

Health education journal, 2013-11, Vol.72 (6), p.755-760

2013

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Process evaluation and exploration of telehealth in motor neuron disease in a UK specialist centre

BMJ open, 2019-10, Vol.9 (10), p.e028526-e028526

2019

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Supporting public involvement in research design and grant development: a case study of a public involvement award scheme managed by a National Institute for Health Research (NIHR) Research Design Service (RDS)

Health expectations : an international journal of public participation in health care and health policy, 2015-10, Vol.18 (5), p.1481-1493

2015

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Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study

The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design

Using telehealth in motor neuron disease to increase access to specialist multidisciplinary care: a UK-based pilot and feasibility study

Using technology to improve access to specialist care in amyotrophic lateral sclerosis: A systematic review

Evaluating a grant development public involvement funding scheme: a qualitative document analysis

DiPALS: Diaphragm Pacing in patients with Amyotrophic Lateral Sclerosis - a randomised controlled trial

The impact of gastrostomy in motor neurone disease: challenges and benefits from a patient and carer perspective

The use of non-invasive ventilation at end of life in patients with motor neurone disease: A qualitative exploration of family carer and health professional experiences

Factors influencing decision-making in relation to timing of gastrostomy insertion in patients with motor neurone disease

Protocol for a cluster randomised controlled trial of the DAFNEplus (Dose Adjustment For Normal Eating) intervention compared with 5x1 DAFNE: a lifelong approach to promote effective self-management in adults with type 1 diabetes

Use of the h-index to measure the quality of the output of health services researchers

The impact on the family carer of motor neurone disease and intervention with noninvasive ventilation

The initiation of non-invasive ventilation for patients with motor neuron disease: Patient and carer perceptions of obstacles and outcomes

Protocol for diaphragm pacing in patients with respiratory muscle weakness due to motor neurone disease (DiPALS): a randomised controlled trial

Public involvement at the design stage of primary health research: A narrative review of case examples

Public involvement in the design and conduct of clinical trials: a narrative review of case examples

Use of non-invasive ventilation at end of life

Public involvement in the systematic review process in health and social care: A narrative review of case examples

Patient perceptions of the referral of older adults to an epilepsy clinic: Do patients and professionals agree who should be referred to a specialist?

Health care professionals’ views on psychological factors affecting nutritional behaviour in people with motor neuron disease: A thematic analysis

Safety and efficacy of diaphragm pacing in patients with respiratory insufficiency due to amyotrophic lateral sclerosis (DiPALS): a multicentre, open-label, randomised controlled trial

Conducting qualitative research within Clinical Trials Units: Avoiding potential pitfalls

Disadvantaged former miners’ perspectives on smoking cessation: A qualitative study

Process evaluation and exploration of telehealth in motor neuron disease in a UK specialist centre

Supporting public involvement in research design and grant development: a case study of a public involvement award scheme managed by a National Institute for Health Research (NIHR) Research Design Service (RDS)

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