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Introduction: Spina bifida-A multidisciplinary perspective

Developmental disabilities research reviews, 2010, Vol.16 (1), p.1-5

2010

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Perspectives on Surgical Care and Outcomes in Spina Bifida

Pediatrics (Evanston), 2018-09, Vol.142 (3)

2018

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Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association

Disability and health journal, 2020-04, Vol.13 (2), p.100816, Article 100816

2020

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The future of the multidisciplinary clinic

TheScientificWorld, 2007-11, Vol.7, p.1752-1756

Brei, Timothy J

2007

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Adolescent/Young Adult Self‐Management and Independence Self‐Report Scale: Preliminary psychometric findings

Child : care, health & development, 2024-01, Vol.50 (1), p.e13229-n/a

2024

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Guidelines and scientifically-based spina bifida care: Guidance across the lifespan in a global health context

Journal of pediatric rehabilitation medicine, 2020-01, Vol.13 (4), p.453-455

2020

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Quality of life: Guidelines for the care of people with spina bifida

Journal of pediatric rehabilitation medicine, 2020-01, Vol.13 (4), p.565-582

2020

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Immigration and transition: Changing demographics forecast the emerging trends in spina bifida care

Journal of pediatric rehabilitation medicine, 2019-01, Vol.12 (4), p.337-338

2019

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Self-management and spina bifida: A systematic review of the literature

Disability and health journal, 2021-01, Vol.14 (1), p.100940, Article 100940

2021

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Quality of Life in Adolescents and Young Adults with and Without Spina Bifida: An Exploratory Analysis

Journal of pediatric nursing, 2019-11, Vol.49, p.10-17

2019

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The development of the Adolescent/Young Adult Self-Management and Independence Scale II: Psychometric data

Journal of pediatric rehabilitation medicine, 2018-01, Vol.11 (4), p.311-322

2018

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Children’s Health Care Providers and Health Care Quality Measurement

Academic pediatrics, 2011-05, Vol.11 (3), p.S87-S88

2011

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Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida

Birth defects research, 2022-01, Vol.114 (2), p.35-44

2022

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Health risk behaviors in spina bifida: the need for clinical and policy action

Developmental medicine and child neurology, 2012-11, Vol.54 (11), p.974-975

2012

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A Global Family Quality of Life Scale: Preliminary psychometric evidence

Journal of pediatric rehabilitation medicine, 2018-01, Vol.11 (2), p.103-114

2018

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Promoting Optimal Development: Identifying Infants and Young Children With Developmental Disorders Through Developmental Surveillance and Screening

Pediatrics (Evanston), 2020-01, Vol.145 (1), p.1

2020

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The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

Journal of the International Neuropsychological Society, 2008-09, Vol.14 (5), p.793-804

2008

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Adolescents with myelomeningocele: activities, beliefs, expectations, and perceptions

Developmental medicine and child neurology, 2004-04, Vol.46 (4), p.244-252

2004

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Pain Assessment and Treatment in Children With Significant Impairment of the Central Nervous System

Pediatrics (Evanston), 2017-06, Vol.139 (6)

2017

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Recognition and Management of Medical Complexity

Pediatrics (Evanston), 2016-12, Vol.138 (6)

2016

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The Experience of Self-Management in Adolescent Women with Spina Bifida

Rehabilitation nursing, 2009-01, Vol.34 (1), p.26-38

2009

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Management of drooling

Seminars in pediatric neurology, 2003-12, Vol.10 (4), p.265-270

Brei, Timothy J

2003

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Self-Management Age-Achievement Expectations Reported by Parents of Youth With Spina Bifida

Journal of pediatric health care, 2012-09, Vol.26 (5), p.e43-e43

2012

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Psychosocial Factors in Children and Youth With Special Health Care Needs and Their Families

Pediatrics (Evanston), 2019-01, Vol.143 (1)

2019

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Patient- and family-centered care coordination: a framework for integrating care for children and youth across multiple systems

Pediatrics (Evanston), 2014-05, Vol.133 (5), p.e1451-e1460

2014

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Introduction: Spina bifida-A multidisciplinary perspective

Perspectives on Surgical Care and Outcomes in Spina Bifida

Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association

The future of the multidisciplinary clinic

Adolescent/Young Adult Self‐Management and Independence Self‐Report Scale: Preliminary psychometric findings

Guidelines and scientifically-based spina bifida care: Guidance across the lifespan in a global health context

Quality of life: Guidelines for the care of people with spina bifida

Immigration and transition: Changing demographics forecast the emerging trends in spina bifida care

Self-management and spina bifida: A systematic review of the literature

Quality of Life in Adolescents and Young Adults with and Without Spina Bifida: An Exploratory Analysis

The development of the Adolescent/Young Adult Self-Management and Independence Scale II: Psychometric data

Children’s Health Care Providers and Health Care Quality Measurement

Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida

Health risk behaviors in spina bifida: the need for clinical and policy action

A Global Family Quality of Life Scale: Preliminary psychometric evidence

Promoting Optimal Development: Identifying Infants and Young Children With Developmental Disorders Through Developmental Surveillance and Screening

The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

Adolescents with myelomeningocele: activities, beliefs, expectations, and perceptions

Pain Assessment and Treatment in Children With Significant Impairment of the Central Nervous System

Recognition and Management of Medical Complexity

The Experience of Self-Management in Adolescent Women with Spina Bifida

Management of drooling

Self-Management Age-Achievement Expectations Reported by Parents of Youth With Spina Bifida

Psychosocial Factors in Children and Youth With Special Health Care Needs and Their Families

Patient- and family-centered care coordination: a framework for integrating care for children and youth across multiple systems

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