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Methods for interpreting change over time in patient-reported outcome measures

Quality of life research, 2013-04, Vol.22 (3), p.475-483

2013

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Understanding Patients Referred to a Tertiary Cancer Centre for a Second Opinion

Clinical oncology (Royal College of Radiologists (Great Britain)), 2021-12, Vol.33 (12), p.e618-e618

2021

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Impact of the treatment-free interval on health-related quality of life in patients with multiple myeloma: a UK cross-sectional survey

Supportive care in cancer, 2013-02, Vol.21 (2), p.599-607

2013

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314 Mapping the Cystic Fibrosis Questionnaire-Revised (CFQ-R) to a preference based utility index

Journal of cystic fibrosis, 2013-06, Vol.12, p.S129-S129

2013

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PCR176 Estimating Utility Values for Health States in Metachromatic Leukodystrophy (MLD)

Value in health, 2023-06, Vol.26 (6), p.S345-S345

2023

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PCN102 The Impact of Muscle Wasting or Weakness in Advanced Pancreatic Cancer Patients: Development of a Conceptual Model

Value in health, 2012-06, Vol.15 (4), p.A226-A226

2012

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Content validity of the facit-fatigue in patients with iron deficiency anemia

Value in health, 2013-05, Vol.16 (3), p.A33-A33

2013

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Measuring fatigue in iron deficiency anemia patients: A psychometric validation study

Value in health, 2013-05, Vol.16 (3), p.A36-A36

2013

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PCN87 HOW DOES PATIENT-REPORTED OUTCOME DATA INFLUENCE THE CLINICAL DECISION MAKING OF PRACTICING ONCOLOGISTS?

Value in health, 2011, Vol.14 (3), p.A170-A170

2011

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PCN26 Health State Utilities for Relapsed/Refractory (Rel/Ref) Hodgkin'S Lymphoma (HL) and Systemic Anaplastic Large-Cell Lymphoma (sALCL): Asian Pacific Country Data

Value in health, 2012-11, Vol.15 (7), p.A657-A657

2012

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PCR92 Symptoms and Impacts of Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency Among Individuals with Different Levels of Motor Function

Value in health, 2022-07, Vol.25 (7), p.S558

2022

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POSA359 Caring for an Individual with Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency: Results from a Caregiver Questionnaire

Value in health, 2022-01, Vol.25 (1), p.S219-S219

2022

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PCR49 Mapping and Linking between the EQ-5D-5L and the PROPr in the United States

Value in health, 2024-06, Vol.27 (6), p.S305-S305

2024

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PRO61 HEREDITARY TRANSTHYRETIN AMYLOIDOSIS CAREGIVER BURDEN STUDY

Value in health, 2019-05, Vol.22, p.S347-S347

2019

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PSS32 Impact of Dry Eye on Everyday Life (Ideel) - Symptom Bother: Estimating Cut-off Scores for Dry Eye Severity Groups

Value in health, 2011, Vol.14 (7), p.A507-A508

2011

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PRO51 Caring for an Individual with Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency: Analysis of Reported Time for Practical and Emotional Care and Paid/Unpaid Help

Value in health, 2021-06, Vol.24, p.S206-S206

2021

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PRO46 Measuring carer utility in rare paediatric disease: a mixed Methods case study in aromatic l-amino acid decarboxylase deficiency (AADCd)

Value in health, 2021-06, Vol.24, p.S205-S205

2021

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Can the functional assessment of multiple sclerosis adapt to changing needs? A psychometric validation in patients with clinically isolated syndrome and early relapsing–remitting multiple sclerosis

Multiple sclerosis, 2011-12, Vol.17 (12), p.1504-1513

2011

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PRO136 Symptoms and Impacts of Nonsense Mutation Duchenne Muscular Dystrophy at Different Stages of Ambulation

Value in health, 2020-12, Vol.23, p.S714-S714

2020

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PATIENT AND CAREGIVER PERSPECTIVES ON TREATMENT WITH LICENCED PEANUT ALLERGY ORAL IMMUNOTHERAPY IN PRACTICE

Annals of allergy, asthma, & immunology, 2022-11, Vol.129 (5), p.S58-S59

2022

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Symptoms and impacts of familial chylomicronemia syndrome (FCS): A qualitative study and development of a patient-centered conceptual model

Atherosclerosis, 2021-08, Vol.331, p.e121-e122

2021

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PCR132 Symptoms and Impacts of Transfusion-Dependent Beta-Thalassemia: A Qualitative Interview Study and the Development of a Conceptual Model

Value in health, 2023-06, Vol.26 (6), p.S336-S336

2023

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P29 Evaluating the Appropriateness of the EQ-5D-5L Descriptive System and the Derived Health Utility Index Scores in Adults with Transfusion-Dependent Beta-Thalassemia: A Mixed-Methods Study

Value in health, 2023-06, Vol.26 (6), p.S7-S7

2023

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POSC357 Economic Burden of Informal Care and Productivity Loss Due to Caring for Individuals with Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency: An Analysis for the US

Value in health, 2022-01, Vol.25 (1), p.S242-S242

2022

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POSB344 A Qualitative Study of the Symptoms and Health-Related Quality of Life Impact Experienced by Patients Diagnosed with NASH (Non-Alcoholic Steatohepatitis)

Value in health, 2022-01, Vol.25 (1), p.S227-S227

2022

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Methods for interpreting change over time in patient-reported outcome measures

Understanding Patients Referred to a Tertiary Cancer Centre for a Second Opinion

Impact of the treatment-free interval on health-related quality of life in patients with multiple myeloma: a UK cross-sectional survey

314 Mapping the Cystic Fibrosis Questionnaire-Revised (CFQ-R) to a preference based utility index

PCR176 Estimating Utility Values for Health States in Metachromatic Leukodystrophy (MLD)

PCN102 The Impact of Muscle Wasting or Weakness in Advanced Pancreatic Cancer Patients: Development of a Conceptual Model

Content validity of the facit-fatigue in patients with iron deficiency anemia

Measuring fatigue in iron deficiency anemia patients: A psychometric validation study

PCN87 HOW DOES PATIENT-REPORTED OUTCOME DATA INFLUENCE THE CLINICAL DECISION MAKING OF PRACTICING ONCOLOGISTS?

PCN26 Health State Utilities for Relapsed/Refractory (Rel/Ref) Hodgkin'S Lymphoma (HL) and Systemic Anaplastic Large-Cell Lymphoma (sALCL): Asian Pacific Country Data

PCR92 Symptoms and Impacts of Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency Among Individuals with Different Levels of Motor Function

POSA359 Caring for an Individual with Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency: Results from a Caregiver Questionnaire

PCR49 Mapping and Linking between the EQ-5D-5L and the PROPr in the United States

PRO61 HEREDITARY TRANSTHYRETIN AMYLOIDOSIS CAREGIVER BURDEN STUDY

PSS32 Impact of Dry Eye on Everyday Life (Ideel) - Symptom Bother: Estimating Cut-off Scores for Dry Eye Severity Groups

PRO51 Caring for an Individual with Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency: Analysis of Reported Time for Practical and Emotional Care and Paid/Unpaid Help

PRO46 Measuring carer utility in rare paediatric disease: a mixed Methods case study in aromatic l-amino acid decarboxylase deficiency (AADCd)

Can the functional assessment of multiple sclerosis adapt to changing needs? A psychometric validation in patients with clinically isolated syndrome and early relapsing–remitting multiple sclerosis

PRO136 Symptoms and Impacts of Nonsense Mutation Duchenne Muscular Dystrophy at Different Stages of Ambulation

PATIENT AND CAREGIVER PERSPECTIVES ON TREATMENT WITH LICENCED PEANUT ALLERGY ORAL IMMUNOTHERAPY IN PRACTICE

Symptoms and impacts of familial chylomicronemia syndrome (FCS): A qualitative study and development of a patient-centered conceptual model

PCR132 Symptoms and Impacts of Transfusion-Dependent Beta-Thalassemia: A Qualitative Interview Study and the Development of a Conceptual Model

P29 Evaluating the Appropriateness of the EQ-5D-5L Descriptive System and the Derived Health Utility Index Scores in Adults with Transfusion-Dependent Beta-Thalassemia: A Mixed-Methods Study

POSC357 Economic Burden of Informal Care and Productivity Loss Due to Caring for Individuals with Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency: An Analysis for the US

POSB344 A Qualitative Study of the Symptoms and Health-Related Quality of Life Impact Experienced by Patients Diagnosed with NASH (Non-Alcoholic Steatohepatitis)

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