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Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey
Disability and rehabilitation, 2019-04, Vol.41 (8), p.974-982
2019
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Training and support needs of scleroderma support group facilitators: the North American Scleroderma Support Group Facilitators Survey
Disability and rehabilitation, 2019-09, Vol.41 (20), p.2477-2482
2019
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Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study
Journal of psychosomatic research, 2020-12, Vol.139, p.110262-110262, Article 110262
2020
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Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study
Arthritis care & research (2010), 2018-02, Vol.70 (2), p.275-283
2018
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Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: A Scleroderma Patient-centered Intervention Network COVID-19 Cohort study
Journal of psychosomatic research, 2020-12, Vol.139, p.110271-110271, Article 110271
2020
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Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trial
Orphanet journal of rare diseases, 2022-10, Vol.17 (1), p.1-396, Article 396
2022
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Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys
Disability and rehabilitation, 2021-04, Vol.43 (9), p.1279-1286
2021
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Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program
Trials, 2019-12, Vol.20 (1), p.717-12, Article 717
2019
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Scleroderma Patient-centered Intervention Network—Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial
BMJ open, 2019-11, Vol.9 (11), p.e029935-e029935
2019
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Reasons for attending support groups and organizational preferences: A replication study using the North American Scleroderma Support Group Survey
Journal of scleroderma and related disorders, 2019-10, Vol.4 (3), p.173-186
2019
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Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study
Journal of psychosomatic research, 2021-01, Vol.140, p.110314-110314, Article 110314
2021
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Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional studyResearch in context
EClinicalMedicine, 2023-08, Vol.62, p.102104
2023
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Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program
Pilot and feasibility studies, 2022-02, Vol.8 (1), p.45-15, Article 45
2022
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