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Improving the informed consent process in international collaborative rare disease research: effective consent for effective research

European journal of human genetics : EJHG, 2016-08, Vol.24 (9), p.1248-1254

2016

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'It's a nightmare': informed consent in paediatric genome-wide sequencing. A qualitative expert interview study from Germany and Switzerland

European journal of human genetics : EJHG, 2023-12, Vol.31 (12), p.1398-1406

2023

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Is 'informed consent' an 'understood consent' in hematopoietic cell transplantation?

Bone marrow transplantation (Basingstoke), 2015-01, Vol.50 (1), p.10-14

2015

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Informed consent

British dental journal, 2021-01, Vol.230 (2), p.59-59

2021

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Opening the "black box" of informed consent appointments for genome sequencing: a multisite observational study

Genetics in medicine, 2019-05, Vol.21 (5), p.1083-1091

2019

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Digital informed consent for urological surgery - randomized controlled study comparing multimedia-supported vs. traditional paper-based informed consent concerning satisfaction, anxiety, information gain and time efficiency

Prostate cancer and prostatic diseases, 2023-11

2023

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Commentary on Eichinger J, Zimmermann B, Elger B, McLennan S, Filges I, Koné I. 2023. 'It's a nightmare': informed consent in paediatric genome-wide sequencing. A qualitative expert interview study from Germany and Switzerland

European journal of human genetics : EJHG, 2023-12, Vol.31 (12), p.1348-1349

Clarke, Angus J

2023

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Dynamic consent: a patient interface for twenty-first century research networks

European journal of human genetics : EJHG, 2015-02, Vol.23 (2), p.141-146

2015

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Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process

European journal of human genetics : EJHG, 2022-12, Vol.30 (12), p.1391-1397

2022

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Researchers' views on informed consent for return of secondary results in genomic research

Genetics in medicine, 2015-08, Vol.17 (8), p.644-650

2015

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A framework for tiered informed consent for health genomic research in Africa

Nature genetics, 2019-11, Vol.51 (11), p.1566-1571

2019

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Don't compromise on informed consent

Nature (London), 2013-09, Vol.501 (7466), p.167-167

Wallace, Helen

2013

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Informed consent: cultural differences

Nature (London), 2012-03, Vol.483 (7387), p.36-36

2012

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'CTRL': an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research

European journal of human genetics : EJHG, 2021-04, Vol.29 (4), p.687-698

2021

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On the ethics of informed consent in genetic data collected before 1997

Nature (London), 2024-03, Vol.627 (8003), p.271-271

2024

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Defining critical educational components of informed consent for genetic testing: views of US-based genetic counselors and medical geneticists

European journal of human genetics : EJHG, 2023-10, Vol.31 (10), p.1165-1174

2023

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Informed consent: a broken contract

Nature (London), 2012-06, Vol.486 (7403), p.312-314

Hayden, Erika Check

2012

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Reflections on dynamic consent in biomedical research: the story so far

European journal of human genetics : EJHG, 2021-04, Vol.29 (4), p.649-656

2021

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Informed Consent in the Older Adult: OSCEs for Assessing Fellows' ACGME and Geriatric Gastroenterology Competencies

The American journal of gastroenterology, 2011-09, Vol.106 (9), p.1575-1579

2011

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Informed Consent - suggested procedures for informed consent for unrelated haematopoietic stem cell donors at various stages of recruitment, donor evaluation, and donor workup

Bone marrow transplantation (Basingstoke), 2003-04, Vol.31 (7), p.539-545

2003

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Informed consent for biobanking: consensus-based guidelines for adequate comprehension

Genetics in medicine, 2015-03, Vol.17 (3), p.226-233

2015

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Overvaluing individual consent ignores risks to tribal participants

Nature reviews. Genetics, 2019-09, Vol.20 (9), p.497

2019

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A tiered-layered-staged model for informed consent in personal genome testing

European journal of human genetics : EJHG, 2013-06, Vol.21 (6), p.596-601

2013

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Informed Consent: Not Just for Procedures Anymore

The American journal of gastroenterology, 2004-06, Vol.99 (6), p.977-980

FELD, Andrew D

2004

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Consent for newborn screening: parents' and health-care professionals' experiences of consent in practice

European journal of human genetics : EJHG, 2016-11, Vol.24 (11), p.1530-1534

2016

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Improving the informed consent process in international collaborative rare disease research: effective consent for effective research

'It's a nightmare': informed consent in paediatric genome-wide sequencing. A qualitative expert interview study from Germany and Switzerland

Is 'informed consent' an 'understood consent' in hematopoietic cell transplantation?

Informed consent

Opening the "black box" of informed consent appointments for genome sequencing: a multisite observational study

Digital informed consent for urological surgery - randomized controlled study comparing multimedia-supported vs. traditional paper-based informed consent concerning satisfaction, anxiety, information gain and time efficiency

Commentary on Eichinger J, Zimmermann B, Elger B, McLennan S, Filges I, Koné I. 2023. 'It's a nightmare': informed consent in paediatric genome-wide sequencing. A qualitative expert interview study from Germany and Switzerland

Dynamic consent: a patient interface for twenty-first century research networks

Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process

Researchers' views on informed consent for return of secondary results in genomic research

A framework for tiered informed consent for health genomic research in Africa

Don't compromise on informed consent

Informed consent: cultural differences

'CTRL': an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research

On the ethics of informed consent in genetic data collected before 1997

Defining critical educational components of informed consent for genetic testing: views of US-based genetic counselors and medical geneticists

Informed consent: a broken contract

Reflections on dynamic consent in biomedical research: the story so far

Informed Consent in the Older Adult: OSCEs for Assessing Fellows' ACGME and Geriatric Gastroenterology Competencies

Informed Consent - suggested procedures for informed consent for unrelated haematopoietic stem cell donors at various stages of recruitment, donor evaluation, and donor workup

Informed consent for biobanking: consensus-based guidelines for adequate comprehension

Overvaluing individual consent ignores risks to tribal participants

A tiered-layered-staged model for informed consent in personal genome testing

Informed Consent: Not Just for Procedures Anymore

Consent for newborn screening: parents' and health-care professionals' experiences of consent in practice

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