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Supporting people with Motor Neuron Disease (MND) to make decisions about gastrostomy feeding tube placement: a survey of UK healthcare professionals' practice and beliefs

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2024-05, Vol.25 (3-4), p.290-298

2024

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A report of resources used by clinicians in the UK to support motor neuron disease genomic testing

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2024-05, Vol.25 (3-4), p.410-412

2024

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Communication change in ALS: engaging people living with ALS and their partners in future research

Disability and rehabilitation: Assistive technology, 2019-10, Vol.14 (7), p.675-681

2019

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An old friend who has overstayed their welcome: the ALSFRS-R total score as primary endpoint for ALS clinical trials

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2021-04, Vol.22 (3-4), p.300-307

2021

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Improving the measurement properties of the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R): deriving a valid measurement total for the calculation of change

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2024-05, Vol.25 (3-4), p.400-409

2024

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A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2023-04, Vol.24 (3-4), p.272-280

2023

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The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2018-07, Vol.19 (5-6), p.351-361

2018

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Gastrostomy use in motor neurone disease (MND): A review, meta-analysis and survey of current practice

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2013-03, Vol.14 (2), p.96-104

2013

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Impact of the covid-19 pandemic on amyotrophic lateral sclerosis care in the UK

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2023-02, Vol.24 (1-2), p.91-99

2023

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Physicians' attitudes toward end-of-life decisions in amyotrophic lateral sclerosis

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2019-01, Vol.20 (1-2), p.74-81

2019

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Effect of lipid profile on prognosis in the patients with amyotrophic lateral sclerosis: Insights from the olesoxime clinical trial

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2015-11, Vol.16 (7-8), p.478-484

2015

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"Anything that makes life's journey better." Exploring the use of digital technology by people living with motor neurone disease

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2017-07, Vol.18 (5-6), p.378-387

2017

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Long-term physical activity: an exogenous risk factor for sporadic amyotrophic lateral sclerosis?

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.377-384

2016

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A comfort assessment of existing cervical orthoses

Ergonomics, 2018-02, Vol.61 (2), p.329-338

2018

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A preliminary randomized trial of the mechanical insufflator-exsufflator versus breath-stacking technique in patients with amyotrophic lateral sclerosis

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2015-11, Vol.16 (7-8), p.448-455

2015

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Measuring disability in amyotrophic lateral sclerosis/motor neuron disease: the WHODAS 2.0-36, WHODAS 2.0-32, and WHODAS 2.0-12

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2023-02, Vol.24 (1-2), p.63-70

2023

Volltextzugriff (PDF)

The natural history of motor neuron disease: Assessing the impact of specialist care

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2013-01, Vol.14 (1), p.13-19

2013

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Using technology to improve access to specialist care in amyotrophic lateral sclerosis: A systematic review

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.313-324

2016

Volltextzugriff (PDF)

Evaluating a novel cervical orthosis, the Sheffield Support Snood, in patients with amyotrophic lateral sclerosis/motor neuron disease with neck weakness

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.436-442

2016

Volltextzugriff (PDF)

A mapping review of international guidance on the management and care of amyotrophic lateral sclerosis (ALS)

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.325-336

2016

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A multicentre evaluation of oropharyngeal secretion management practices in amyotrophic lateral sclerosis

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2017-02, Vol.18 (1-2), p.1-9

2017

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Head-Up; An interdisciplinary, participatory and co-design process informing the development of a novel head and neck support for people living with progressive neck muscle weakness

Journal of medical engineering & technology, 2015-10, Vol.39 (7), p.404-410

2015

Volltextzugriff (PDF)

Developing an outcome measure for excessive saliva management in MND and an evaluation of saliva burden in Sheffield

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2015-03, Vol.16 (1-2), p.108-113

2015

Volltextzugriff (PDF)

The initiation of non-invasive ventilation for patients with motor neuron disease: Patient and carer perceptions of obstacles and outcomes

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2013-03, Vol.14 (2), p.105-110

2013

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Management of sialorrhoea in motor neuron disease: A survey of current UK practice

Amyotrophic lateral sclerosis and frontotemporal degeneration, 2013-12, Vol.14 (7-8), p.521-527

2013

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Supporting people with Motor Neuron Disease (MND) to make decisions about gastrostomy feeding tube placement: a survey of UK healthcare professionals' practice and beliefs

A report of resources used by clinicians in the UK to support motor neuron disease genomic testing

Communication change in ALS: engaging people living with ALS and their partners in future research

An old friend who has overstayed their welcome: the ALSFRS-R total score as primary endpoint for ALS clinical trials

Improving the measurement properties of the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R): deriving a valid measurement total for the calculation of change

A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey

The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design

Gastrostomy use in motor neurone disease (MND): A review, meta-analysis and survey of current practice

Impact of the covid-19 pandemic on amyotrophic lateral sclerosis care in the UK

Physicians' attitudes toward end-of-life decisions in amyotrophic lateral sclerosis

Effect of lipid profile on prognosis in the patients with amyotrophic lateral sclerosis: Insights from the olesoxime clinical trial

"Anything that makes life's journey better." Exploring the use of digital technology by people living with motor neurone disease

Long-term physical activity: an exogenous risk factor for sporadic amyotrophic lateral sclerosis?

A comfort assessment of existing cervical orthoses

A preliminary randomized trial of the mechanical insufflator-exsufflator versus breath-stacking technique in patients with amyotrophic lateral sclerosis

Measuring disability in amyotrophic lateral sclerosis/motor neuron disease: the WHODAS 2.0-36, WHODAS 2.0-32, and WHODAS 2.0-12

The natural history of motor neuron disease: Assessing the impact of specialist care

Using technology to improve access to specialist care in amyotrophic lateral sclerosis: A systematic review

Evaluating a novel cervical orthosis, the Sheffield Support Snood, in patients with amyotrophic lateral sclerosis/motor neuron disease with neck weakness

A mapping review of international guidance on the management and care of amyotrophic lateral sclerosis (ALS)

A multicentre evaluation of oropharyngeal secretion management practices in amyotrophic lateral sclerosis

Head-Up; An interdisciplinary, participatory and co-design process informing the development of a novel head and neck support for people living with progressive neck muscle weakness

Developing an outcome measure for excessive saliva management in MND and an evaluation of saliva burden in Sheffield

The initiation of non-invasive ventilation for patients with motor neuron disease: Patient and carer perceptions of obstacles and outcomes

Management of sialorrhoea in motor neuron disease: A survey of current UK practice

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