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A report of resources used by clinicians in the UK to support motor neuron disease genomic testing
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2024-05, Vol.25 (3-4), p.410-412
2024
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Supporting people with Motor Neuron Disease (MND) to make decisions about gastrostomy feeding tube placement: a survey of UK healthcare professionals' practice and beliefs
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2024-05, Vol.25 (3-4), p.290-298
2024
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Analysis of incidence of motor neuron disease in England 1998-2019: use of three linked datasets
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2022-07, Vol.23 (5-6), p.363-371
2022
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An old friend who has overstayed their welcome: the ALSFRS-R total score as primary endpoint for ALS clinical trials
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2021-04, Vol.22 (3-4), p.300-307
2021
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Improving the measurement properties of the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R): deriving a valid measurement total for the calculation of change
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2024-05, Vol.25 (3-4), p.400-409
2024
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Gastrostomy use in motor neurone disease (MND): A review, meta-analysis and survey of current practice
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2013-03, Vol.14 (2), p.96-104
2013
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The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2018-07, Vol.19 (5-6), p.351-361
2018
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A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2023-04, Vol.24 (3-4), p.272-280
2023
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Exploring patient and public involvement in motor neuron disease research
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2019-10, Vol.20 (7-8), p.511-520
2019
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Physicians' attitudes toward end-of-life decisions in amyotrophic lateral sclerosis
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2019-01, Vol.20 (1-2), p.74-81
2019
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REVEALS—a longitudinal cohort study of multifaceted respiratory assessment in ALS
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2024-06, p.1-11
2024
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Impact of the covid-19 pandemic on amyotrophic lateral sclerosis care in the UK
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2023-02, Vol.24 (1-2), p.91-99
2023
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Effect of lipid profile on prognosis in the patients with amyotrophic lateral sclerosis: Insights from the olesoxime clinical trial
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2015-11, Vol.16 (7-8), p.478-484
2015
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"Anything that makes life's journey better." Exploring the use of digital technology by people living with motor neurone disease
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2017-07, Vol.18 (5-6), p.378-387
2017
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Dyspnea (breathlessness) in amyotrophic lateral sclerosis/motor neuron disease: prevalence, progression, severity, and correlates
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2024-03, p.1-11
2024
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Long-term physical activity: an exogenous risk factor for sporadic amyotrophic lateral sclerosis?
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.377-384
2016
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A preliminary randomized trial of the mechanical insufflator-exsufflator versus breath-stacking technique in patients with amyotrophic lateral sclerosis
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2015-11, Vol.16 (7-8), p.448-455
2015
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TRICALS: creating a highway toward a cure
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2020-10, Vol.21 (7-8), p.496-501
2020
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Measuring disability in amyotrophic lateral sclerosis/motor neuron disease: the WHODAS 2.0-36, WHODAS 2.0-32, and WHODAS 2.0-12
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2023-02, Vol.24 (1-2), p.63-70
2023
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The natural history of motor neuron disease: Assessing the impact of specialist care
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2013-01, Vol.14 (1), p.13-19
2013
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Using technology to improve access to specialist care in amyotrophic lateral sclerosis: A systematic review
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.313-324
2016
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Measuring quality of life in ALS/MND: validation of the WHOQOL-BREF
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2020-07, Vol.21 (5-6), p.364-372
2020
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Evaluating a novel cervical orthosis, the Sheffield Support Snood, in patients with amyotrophic lateral sclerosis/motor neuron disease with neck weakness
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.436-442
2016
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Fit for purpose? A cross-sectional study to evaluate the acceptability and usability of HeadUp, a novel neck support collar for neurological neck weakness
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2021-01, Vol.22 (1-2), p.38-45
2021
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A mapping review of international guidance on the management and care of amyotrophic lateral sclerosis (ALS)
Amyotrophic lateral sclerosis and frontotemporal degeneration, 2016-08, Vol.17 (5-6), p.325-336
2016
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