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Satisfaction with quality of ICU care for patients and families: the euroQ2 project

Critical care (London, England), 2017-09, Vol.21 (1), p.239-239, Article 239

2017

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Definitions of resilience and resilience resource use as described by adults with congenital heart disease

International journal of cardiology congenital heart disease, 2023-06, Vol.12, p.100447, Article 100447

2023

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Financial Hardship: A Qualitative Study Exploring Perspectives of Seriously Ill Patients and Their Family

Journal of pain and symptom management, 2024-08

2024

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Heterogeneity of Treatment Effect in a Randomized Trial of a Communication Intervention

Journal of pain and symptom management, 2022-09, Vol.64 (3), p.298-303

2022

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Truths, Principles, Maxims, and Other Smart Things We Learned From J. Randall Curtis

Journal of pain and symptom management, 2022-06, Vol.63 (6), p.e595-e600

2022

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Experience With Advance Care Planning Discussions Among Pregnant Women With Congenital Heart Disease

Journal of pain and symptom management, 2021-09, Vol.62 (3), p.587-592

2021

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Patterns of Cost for Patients Dying in the Intensive Care Unit and Implications for Cost Savings of Palliative Care Interventions

Journal of palliative medicine, 2016-11, Vol.19 (11), p.1171-1178

2016

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The Association between Chronic Conditions, End-of-Life Health Care Use, and Documentation of Advance Care Planning among Patients with Cancer

Journal of palliative medicine, 2020-10, Vol.23 (10), p.1335-1341

2020

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Type of Intensive Care Unit Matters: Variations in Palliative Care for Critically Ill Patients with Chronic, Life-Limiting Illness

Journal of palliative medicine, 2021-06, Vol.24 (6), p.857-864

2021

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Patient-Reported Receipt of Goal-Concordant Care Among Seriously Ill Outpatients—Prevalence and Associated Factors

Journal of pain and symptom management, 2020-10, Vol.60 (4), p.765-773

2020

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Postdoctoral Research Training in Palliative Care: Lessons Learned From a T32 Program

Journal of pain and symptom management, 2020-03, Vol.59 (3), p.750-760.e8

2020

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Sensitivity and Specificity of a Machine Learning Algorithm to Identify Goals-of-care Documentation for Adults With Congenital Heart Disease at the End of Life

Journal of pain and symptom management, 2020-09, Vol.60 (3), p.e33-e36

2020

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Seriously ill patients’ prioritized goals and their clinicians’ perceptions of those goals

Journal of pain and symptom management, 2022-10, Vol.64 (4), p.410-418

2022

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Novel Data Linkages to Characterize Palliative and End-Of-Life Care: Challenges and Considerations

Journal of pain and symptom management, 2019-11, Vol.58 (5), p.851-856

2019

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The Patient and Family Member Experience of Financial Stress Related to Critical Illness

Journal of palliative medicine, 2020-07, Vol.23 (7), p.972-976

2020

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Expanding Conceptualizations of Social Justice across All Levels of Social Work Practice: Recognition Theory and Its Contributions

The Social service review (Chicago), 2018-06, Vol.92 (2), p.143-170

2018

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Rationale and design of a randomized controlled clinical trial of a resilience-building intervention in adults with congenital heart disease

Contemporary clinical trials, 2024-10, Vol.145, p.107638, Article 107638

2024

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Predictors of Advance Care Planning Documentation in Patients With Underlying Chronic Illness Who Died of Traumatic Injury

Journal of pain and symptom management, 2019-11, Vol.58 (5), p.857-863.e1

2019

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The Influence of Multimorbidity on Health Care Utilization at the End of Life for Patients with Chronic Conditions

Journal of palliative medicine, 2019-10, Vol.22 (10), p.1260-1265

2019

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Addressing lung transplant with adults with cystic fibrosis: A qualitative analysis of patients' perspectives and experiences

Journal of cystic fibrosis, 2019-05, Vol.18 (3), p.416-419

2019

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Exploring Opportunities for Primary Outpatient Palliative Care for Adults with Cystic Fibrosis: A Mixed-Methods Study of Patients' Needs

Journal of palliative medicine, 2018-04, Vol.21 (4), p.513-521

2018

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Predictors of Death in the Hospital for Patients with Chronic Serious Illness

Journal of palliative medicine, 2018-03, Vol.21 (3), p.307-314

2018

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It's part of who I am: The impact of congenital heart disease on adult identity and life experience

International journal of cardiology congenital heart disease, 2021-08, Vol.4, p.100146, Article 100146

2021

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Patient perspectives on clinician-patient partnerships to achieve comprehensive pregnancy care in adult congenital heart disease

International journal of cardiology congenital heart disease, 2022-03, Vol.7, p.100312, Article 100312

2022

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Controlling for Confounding Variables: Accounting for Dataset Bias in Classifying Patient-Provider Interactions

Explainable AI in Healthcare and Medicine, 2021, p.271-282

2021

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Satisfaction with quality of ICU care for patients and families: the euroQ2 project

Definitions of resilience and resilience resource use as described by adults with congenital heart disease

Financial Hardship: A Qualitative Study Exploring Perspectives of Seriously Ill Patients and Their Family

Heterogeneity of Treatment Effect in a Randomized Trial of a Communication Intervention

Truths, Principles, Maxims, and Other Smart Things We Learned From J. Randall Curtis

Experience With Advance Care Planning Discussions Among Pregnant Women With Congenital Heart Disease

Patterns of Cost for Patients Dying in the Intensive Care Unit and Implications for Cost Savings of Palliative Care Interventions

The Association between Chronic Conditions, End-of-Life Health Care Use, and Documentation of Advance Care Planning among Patients with Cancer

Type of Intensive Care Unit Matters: Variations in Palliative Care for Critically Ill Patients with Chronic, Life-Limiting Illness

Patient-Reported Receipt of Goal-Concordant Care Among Seriously Ill Outpatients—Prevalence and Associated Factors

Postdoctoral Research Training in Palliative Care: Lessons Learned From a T32 Program

Sensitivity and Specificity of a Machine Learning Algorithm to Identify Goals-of-care Documentation for Adults With Congenital Heart Disease at the End of Life

Seriously ill patients’ prioritized goals and their clinicians’ perceptions of those goals

Novel Data Linkages to Characterize Palliative and End-Of-Life Care: Challenges and Considerations

The Patient and Family Member Experience of Financial Stress Related to Critical Illness

Expanding Conceptualizations of Social Justice across All Levels of Social Work Practice: Recognition Theory and Its Contributions

Rationale and design of a randomized controlled clinical trial of a resilience-building intervention in adults with congenital heart disease

Predictors of Advance Care Planning Documentation in Patients With Underlying Chronic Illness Who Died of Traumatic Injury

The Influence of Multimorbidity on Health Care Utilization at the End of Life for Patients with Chronic Conditions

Addressing lung transplant with adults with cystic fibrosis: A qualitative analysis of patients' perspectives and experiences

Exploring Opportunities for Primary Outpatient Palliative Care for Adults with Cystic Fibrosis: A Mixed-Methods Study of Patients' Needs

Predictors of Death in the Hospital for Patients with Chronic Serious Illness

It's part of who I am: The impact of congenital heart disease on adult identity and life experience

Patient perspectives on clinician-patient partnerships to achieve comprehensive pregnancy care in adult congenital heart disease

Controlling for Confounding Variables: Accounting for Dataset Bias in Classifying Patient-Provider Interactions

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