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Transition of young people from children’s into adults’ services: what works for whom and in what circumstances – protocol for a realist synthesis

BMJ open, 2024-01, Vol.14 (1), p.e076649-e076649

2024

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‘They could not see our eyes, they cannot see our faces, they do not know who we are and that is hard’: a qualitative interview study with staff caring for children and families in a UK specialist children’s hospital during the COVID-19 pandemic

BMJ open, 2023-06, Vol.13 (6), p.e070048-e070048

2023

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Systematic review of basic oral care for the management of oral mucositis in cancer patients

Supportive care in cancer, 2013-11, Vol.21 (11), p.3165-3177

2013

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Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review

BMC pediatrics, 2022-10, Vol.22 (1), p.1-595, Article 595

2022

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Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance

BMJ open, 2019-08, Vol.9 (8), p.e028119-e028119

2019

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Shared decision-making experiences in child long-term ventilation: a systematic review

European respiratory review, 2023-09, Vol.32 (169), p.230098

2023

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Care coordination, consistency and continuity: the case of the key worker role in children's cancer care

International journal of qualitative studies on health and well-being, 2022-12, Vol.17 (1), p.2092958-2092958

2022

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Learning disability nurse provision in children's hospitals: hospital staff perceptions of whether it makes a difference

BMC pediatrics, 2019-06, Vol.19 (1), p.192-192, Article 192

2019

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Initial evaluation of an electronic symptom diary for adolescents with cancer

JMIR research protocols, 2012-12, Vol.1 (2), p.e23-e23

2012

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Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study

BMJ open, 2020-11, Vol.10 (11), p.e038471-e038471

2020

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Cancer care for adolescents and young adults

1, 2008

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Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study

BMC health services research, 2018-03, Vol.18 (1), p.203-203, Article 203

2018

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Reporting the whole story: Analysis of the ‘out‐of‐scope’ questions from the James Lind Alliance Teenage and Young Adult Cancer Priority Setting Partnership Survey

Health expectations : an international journal of public participation in health care and health policy, 2021-10, Vol.24 (5), p.1593-1606

2021

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Access to and experience of education for children and adolescents with cancer: a scoping review protocol

Systematic reviews, 2021-06, Vol.10 (1), p.1-167, Article 167

2021

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Acceptance and commitment therapy for young brain tumour survivors: study protocol for an acceptability and feasibility trial

BMJ open, 2021-06, Vol.11 (6), p.e051091-e051091

2021

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Designing, Developing, and Testing a Chatbot for Parents and Caregivers of Children and Young People With Rheumatological Conditions (the IMPACT Study): Protocol for a Co-Designed Proof-of-Concept Study

JMIR research protocols, 2024-04, Vol.13, p.e57238-e57238

2024

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Protecting an adult identity: A grounded theory of supportive care for young adults recently diagnosed with cancer

International journal of nursing studies, 2018-05, Vol.81, p.40-48

2018

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" We Sometimes Hold on to Ours " - Professionals' Views on Factors that both Delay and Facilitate Transition to Adult Care

Frontiers in pediatrics, 2016-11, Vol.4, p.125-125

2016

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Mental Health Admissions to Paediatric Wards Study (MAPS): a protocol for the analysis of Hospital Episode Statistics (HES) data

BMJ paediatrics open, 2024-01, Vol.8 (1), p.e002352

2024

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Mental Health Admissions to Paediatric Wards Study (MAPS): protocol of a prospective study of mental health admissions to paediatric wards in England using surveillance and qualitative methods

BMJ paediatrics open, 2024-01, Vol.8 (1), p.e002186

2024

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What matters to you? Engaging with children in the James Lind Alliance Children's Cancer Priority Setting Partnership

Research involvement and engagement, 2023-11, Vol.9 (1), p.110-110, Article 110

2023

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Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study

Health and social care delivery research, 2022-06, Vol.10 (13), p.1-168

2022

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A review of long-term follow-up for survivors of childhood cancer

European journal of cancer (1990), 2007-08, Vol.43 (12), p.1781-1790

2007

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Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement

Research involvement and engagement, 2018-12, Vol.4 (1), p.50-50, Article 50

2018

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Transition of young people from children’s into adults’ services: what works for whom and in what circumstances – protocol for a realist synthesis

‘They could not see our eyes, they cannot see our faces, they do not know who we are and that is hard’: a qualitative interview study with staff caring for children and families in a UK specialist children’s hospital during the COVID-19 pandemic

Systematic review of basic oral care for the management of oral mucositis in cancer patients

Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review

Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance

Shared decision-making experiences in child long-term ventilation: a systematic review

Care coordination, consistency and continuity: the case of the key worker role in children's cancer care

Learning disability nurse provision in children's hospitals: hospital staff perceptions of whether it makes a difference

Initial evaluation of an electronic symptom diary for adolescents with cancer

Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study

Cancer care for adolescents and young adults

Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study

Reporting the whole story: Analysis of the ‘out‐of‐scope’ questions from the James Lind Alliance Teenage and Young Adult Cancer Priority Setting Partnership Survey

Access to and experience of education for children and adolescents with cancer: a scoping review protocol

Research priorities for children’s cancer: a James Lind Alliance Priority Setting Partnership in the UK

Acceptance and commitment therapy for young brain tumour survivors: study protocol for an acceptability and feasibility trial

Designing, Developing, and Testing a Chatbot for Parents and Caregivers of Children and Young People With Rheumatological Conditions (the IMPACT Study): Protocol for a Co-Designed Proof-of-Concept Study

Protecting an adult identity: A grounded theory of supportive care for young adults recently diagnosed with cancer

" We Sometimes Hold on to Ours " - Professionals' Views on Factors that both Delay and Facilitate Transition to Adult Care

Mental Health Admissions to Paediatric Wards Study (MAPS): a protocol for the analysis of Hospital Episode Statistics (HES) data

Mental Health Admissions to Paediatric Wards Study (MAPS): protocol of a prospective study of mental health admissions to paediatric wards in England using surveillance and qualitative methods

What matters to you? Engaging with children in the James Lind Alliance Children's Cancer Priority Setting Partnership

Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study

A review of long-term follow-up for survivors of childhood cancer

Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement

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