Details

Autor(en) / Beteiligte

• Kyte, Eli B.
• Holth Skogan, Annette
• Bjøråsen Baklid, Åsne
• Malmgren, Kristina
• Ozanne, Anneli
• Alfstad, Kristin Å.

Titel

Patients’ long-term perspectives on gains and losses after temporal lobe resection for epilepsy

Ist Teil von

• Epilepsy & behavior, 2023-10, Vol.147, p.109400-109400, Article 109400

Ort / Verlag

Elsevier Inc

Erscheinungsjahr

2023

Quelle

Alma/SFX Local Collection

Beschreibungen/Notizen

• •Patients report cognitive challenges more than 10 years after epilepsy surgery.•Memory and naming difficulties have lasting effects on social and working life.•Most express satisfaction with surgery despite adverse cognitive effects.•Individualized information on the risks and benefits of surgery is needed. To investigate long-term (>10 years) experiences and overall satisfaction with temporal lobe resections (TLB) for epilepsy. Eligible participants were identified through the administrative epilepsy surgery registry at Oslo University Hospital. Data were collected through individual, semi-structured interviews with fifty participants. Interview records were analyzed using reflexive thematic analysis. Participants’ answers were divided into two main themes: “looking back on surgery” and”considering gains and losses from surgery”. Most participants expressed satisfaction with having undergone surgery. Nevertheless, postsurgical problems had been encountered, and presurgical hopes had only partly been fulfilled. They described memory and naming problems with a major impact on daily life. Further, they had thoughts about effects on employment, independence, and feelings of loneliness, and expressed a need for more and better preoperative information. Presurgical hopes go beyond seizure freedom and memory and naming problems are experienced lasting many years after surgery in the temporal lobe. Better preoperative information, particularly about unwanted cognitive effects, is of prime importance. By exploring patientś presurgical hopes, a common ground for expectations on surgery may be found along with strategies on how to cope with cognitive difficulties and possible negative life changes.