Details

Autor(en) / Beteiligte

• Linkugel, Andrew D.
• Trivedi, Prerak B.
• Varagur, Kaamya
• Skolnick, Gary B.
• Menezes, Maithilee D.
• Dunsky, Katherine A.
• Grames, Lynn M.
• Locke, Lauren C.
• Naidoo, Sybill D.
• Snyder-Warwick, Alison K.
• Patel, Kamlesh B.

Titel

Multidisciplinary Optimal Outcomes Reporting and Team Clinic Retention in Isolated Nonsyndromic Cleft Palate

Ist Teil von

• The Cleft palate-craniofacial journal, 2023-10, p.10556656231205974-10556656231205974

Erscheinungsjahr

2023

Link zum Volltext

Quelle

Alma/SFX Local Collection

Beschreibungen/Notizen

• Objective Optimal Outcomes Reporting was recently introduced to categorize outcomes after cleft palate repair. We seek to propose an expanded version of Optimal Outcomes Reporting and to determine if correlation exists between the expanded outcomes and persistence with team care follow-up through age 9. Design Retrospective cohort study. Setting Cleft team at large pediatric hospital. Patients Patients with isolated nonsyndromic cleft palate (n = 83) born from 2001-2012. Main Outcome Measures Patients who continued to present at age 5 or greater were assessed for optimal outcomes. Optimal outcomes were: surgery - no fistula or velopharyngeal insufficiency; otolaryngology - no obstructive sleep apnea or signs of chronic middle ear disease; audiology - no hearing loss; speech-language pathology - no assessed need for speech therapy. Results Of the 83 patients identified, 41 were assessed for optimal outcomes. Optimal outcome in any discipline was not associated with follow-up through age 9 (0.112 ≤  p ≤ 0.999). For all disciplines, the group with suboptimal outcomes had a higher proportion of patients from geographic areas in the most disadvantaged quartile of social vulnerability index, with the strongest association in the group with suboptimal speech outcome (OR 6.75, 95% CI 0.841-81.1). Conclusions Optimal outcomes and retention in team clinic were not statistically significantly associated, but clinically relevant associations were found between patients in the most disadvantaged quartile of social vulnerability and their outcomes. A patient-centered approach, including caregiver education about long-term care for patients with cleft palate, would allow for enhanced resource utilization to improve retention for patients of concern.