Details

Autor(en) / Beteiligte

• de Jel, Dominique V.C.
• Young-Afat, Danny A.
• Ooms-Renckens, Marleen M.
• Smeele, Ludi E.
• Rakhorst, Hinne A.
• Hendrickx, J.J.
• Hoebers, F.J.P.
• Speksnijder, C.M.
• Witjes, M.J.H.
• Ghaeminia, H.
• Lacko, M.
• Baatenburg de Jong, R.J.
• Takes, R.P.
• van Es, R.J.J.
• Verschuur, H.P.
• Jansen, J.C.
• Vrieze, O. Hamming
• van Bemmel, A.J.M.
• Schwandt, L.Q.

Titel

Patients’ and Healthcare Professionals’ Perspectives on Better Use of Patient-Reported Outcome Measures in Head and Neck Cancer

Ist Teil von

• Value in health, 2023-08, Vol.26 (8), p.1210-1216

Ort / Verlag

United States: Elsevier Inc

Erscheinungsjahr

2023

Quelle

MEDLINE

Beschreibungen/Notizen

• Patients with head and neck cancer (HNC) are often highly affected by disease and treatment, resulting in impaired physical functioning and quality of life. Therefore, evaluation of patients’ psychosocial and functional outcomes can be facilitated by patient-reported outcome measures (PROMs). By providing the patients’ own perspectives, PROMs are crucial to improving patient-centered care. This study aimed to improve understanding of the perceived value of PROMs in HNC care and how to optimize their clinical value based on patients’ and multidisciplinary healthcare professionals’ (HCPs) perspectives. Population-based surveys among patients with HNC through their patient association and among HCPs nationwide through the Dutch Head and Neck Audit. A total of 54 patients and 40 multidisciplinary HCPs from all 14 nationwide HNC centers (100%) responded. For patients, the most important element of patient-reported outcome collection systems was including a call to action for those with worse-than-average scores (28%), whereas clinicians found discussing scores during clinical visits the most important (39%). Although 16% of clinicians found short completion time the most important element, none of the patients selected completion time as most important. Additionally, 17% of patients stated completion time was not an issue, provided clinicians would use the outcomes for clinical purposes. Although patients and clinicians acknowledged the value of patient-reported outcomes, patients would like to be more involved in the clinical implications of their outcomes. Enhancing patients’ involvement by a call to action and providing feedback on their scores during outpatient clinic visits may improve the clinical value of PROMs. •As highlighted by the coronavirus disease 2019 pandemic, there is a need for better patient monitoring options without the need for in-hospital visits. Embedding patient-reported outcome measures (PROMs) in routine clinical practice could be an adequate starting point.•The value of PROMs was recognized by all but one healthcare professional. Both parties emphasized on the importance of discussing PROM scores during clinical visits.•Patients would like to see a call to action if their PROM scores are below average and feel this should be prioritized over shortening PROM completion time.