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Project EPIC (Early Palliative Care In COPD): A Formative and Summative Evaluation of the EPIC Telehealth Intervention
Journal of pain and symptom management, 2023-04, Vol.65 (4), p.335-347.e3
Iyer, Anand S.
Wells, Rachel D.
Dionne-Odom, J. Nicholas
Bechthold, Avery C.
Armstrong, Margaret
Byun, Jun Yeong
O'Hare, Lanier
Taylor, Richard
Ford, Stephanie
Coffee-Dunning, Jazmine
Dransfield, Mark T.
Brown, Cynthia J.
Bakitas, Marie A.
2023
Details
Autor(en) / Beteiligte
Iyer, Anand S.
Wells, Rachel D.
Dionne-Odom, J. Nicholas
Bechthold, Avery C.
Armstrong, Margaret
Byun, Jun Yeong
O'Hare, Lanier
Taylor, Richard
Ford, Stephanie
Coffee-Dunning, Jazmine
Dransfield, Mark T.
Brown, Cynthia J.
Bakitas, Marie A.
Titel
Project EPIC (Early Palliative Care In COPD): A Formative and Summative Evaluation of the EPIC Telehealth Intervention
Ist Teil von
Journal of pain and symptom management, 2023-04, Vol.65 (4), p.335-347.e3
Ort / Verlag
United States: Elsevier Inc
Erscheinungsjahr
2023
Link zum Volltext
Quelle
Free E-Journal (出版社公開部分のみ)
Beschreibungen/Notizen
Early, concurrent palliative care interventions in chronic obstructive pulmonary disease (COPD) are limited. Project EPIC (Early Palliative Care In COPD) is a multiphase mixed methods study working to fill this gap. To conduct a formative and summative evaluation of EPIC, a telephonic nurse coach-led early palliative care intervention for COPD adapted from the ENABLE© intervention in cancer. Phase I Formative Evaluation: Patients with moderate-to-very-severe COPD, family caregivers, and pulmonary and palliative care clinicians rated the acceptability and feasibility of EPIC (≥4 out of five on a Likert-scale survey). Phase II Summative Evaluation: Patients and family caregivers in Phase I participated in a pilot of the three month EPIC prototype to evaluate intervention and data collection feasibility (≥70% completion) and to seek qualitative feedback. Phase I Formative Evaluation: Patients (n=10), family caregivers (n=10), pulmonary clinicians (n=6), and palliative care clinicians (n=6) found EPIC acceptable and feasible to support adaptation, while priority early palliative care needs in COPD from our prior research mapped well to the EPIC prototype. Phase II Summative Evaluation: Patients (n=5; ages 49–72, 40% moderate COPD, 40% Black) and their family caregivers (n=5; ages 51–73, 40% Black) completed 100% of EPIC prototype components, including weekly telephone sessions, a one month follow-up call, Advance Directive, palliative care clinic attendance, and 95% of monthly phone data collection sessions. Feedback from participants about EPIC was all positive. EPIC was acceptable and feasible in patients with COPD and their family caregivers. Larger feasibility and effectiveness trials are warranted.
Sprache
Englisch
Identifikatoren
ISSN: 0885-3924
eISSN: 1873-6513
DOI: 10.1016/j.jpainsymman.2022.11.024
Titel-ID: cdi_proquest_miscellaneous_2753297990
Format
–
Schlagworte
Aged
,
Caregivers
,
chronic obstructive pulmonary disease
,
COPD
,
family caregiver
,
Hospice and Palliative Care Nursing
,
Humans
,
implementation science
,
intervention development
,
Middle Aged
,
mixed methods
,
Palliative care
,
Palliative Care - methods
,
pilot study
,
Pulmonary Disease, Chronic Obstructive - therapy
,
qualitative
,
Telemedicine - methods
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