Details

Autor(en) / Beteiligte

• Busse, Monica
• Playle, Rebecca
• Latchem-Hastings, Julie
• Button, Kate
• Lowe, Rachel
• Barlow, Christy
• Lloyd, Barry
• Dean-Young, Andrew
• Poile, Vincent
• Dawes, Helen
• Davies, Freya
• O'Halloran, Rhian
• Tallantyre, Emma
• Edwards, Adrian
• Wood, Fiona
• Jones, Fiona

Titel

A web-based life-style, exercise and activity intervention for people with progressive multiple sclerosis: Results of a single-arm feasibility study

Ist Teil von

• Multiple sclerosis and related disorders, 2022-01, Vol.57, p.103388-103388, Article 103388

Ort / Verlag

Netherlands: Elsevier B.V

Erscheinungsjahr

2022

Link zum Volltext

Quelle

MEDLINE

Beschreibungen/Notizen

• •Co-designed digital interventions provide unique opportunities to reach underserved groups.•Our web-based physical activity intervention for people with progressive MS utilised technology to provide a new way of partnership working.•Users were able to develop valuable skills in self-management support and use of technology and engagement in the intervention was associated with improvements in MSIS-29 scores.•Delivering and evaluating this novel technology based intervention in a trial setting is feasible; a full effectiveness trial is warranted. People with progressive Multiple Sclerosis often struggle to access appropriate and inclusive support for regular physical activity. The Lifestyle, Exercise and Activity Package (LEAP-MS) intervention, is a co-designed web-based physical activity intervention for people with progressive Multiple Sclerosis (MS). It consists of two key components; (1) web-based physical activity coaching with physiotherapists using self-management support strategies and 2) an interactive web-based platform including a physical activity information suite, an activity selection and planning tool and a participant-physiotherapist messaging system. We aimed to evaluate recruitment, retention and uptake, in a single arm feasibility study. Participants with primary or secondary progressive MS with an Expanded Disability Status Scale score of 6 to 8 were recruited. Assessments included the MS Impact Scale (MSIS-29) and measures of participation at baseline, three and six months. All participants received the intervention which consisted of up to six web-based physiotherapy- led physical activity coaching sessions alongside access to web-based education and activity suites. Recruitment, retention and uptake data were summarised. Pre-defined progression criteria were used to guide feasibility assessment. Clinical outcome data were analysed descriptively. Fifty-eight percent (21/36) of those submitting expressions of interest were recruited; 76% completed follow-up. Pre-specified progression criteria for retention were met but recruitment did not meet progression criteria. The intervention achieved set fidelity criteria. At three months, 12 participants (75%) reported improvements in routine activities after the intervention. MSIS-29 physical scores improved by an average of eight points (95% CI -12.6 to -3.3). Improvements were also seen in MSIS-29 psychological scores and fatigue. Some improvements were maintained at six months. The LEAP-MS intervention is feasible and associated with improvements in MSIS-29 scores. The intervention facilitated partnership working between physiotherapists and people with progressive MS. Users developed valuable skills in supported self-management by focussing on enhancing physical activity to support overall wellbeing. This work has laid the foundations for a large-scale evaluation of a co-designed intervention with potential for far reaching impact on the lives of people with progressive MS.