Details

Autor(en) / Beteiligte

• Higgins, Agnes
• Downes, Carmel
• Varley, Jarleth
• Tyrell, Ella
• Normand, Charles
• Doherty, Colin P.
• Begley, Cecily
• Elliott, Naomi

Titel

Patients with epilepsy care experiences: Comparison between services with and without an epilepsy specialist nurse

Ist Teil von

• Epilepsy & behavior, 2018-08, Vol.85, p.85-94

Ort / Verlag

United States: Elsevier Inc

Erscheinungsjahr

2018

Link zum Volltext

Quelle

Elsevier ScienceDirect Journals Complete

Beschreibungen/Notizen

• The aim of this study was to determine whether there were differences in experiences of care, satisfaction with care and quality of life between those who were in receipt of care from a service with an epilepsy specialist nurse (ESN) and those who were receiving care from a service that did not include an ESN. A comparative design was used, which involved the completion of a confidential, self-completed survey. The survey was administered to a nonprobability convenience sample of patients with epilepsy who were attending services with an ESN (n = 244) and services where the treatment team did not include an ESN (n = 261) from each of the four health areas in Ireland. This study found that, in comparison to people with epilepsy (PWE) who attended a service without an ESN, PWE who attended a service with an ESN reported receiving greater amount of information, were more involved in their care, perceived care to be better coordinated, and had greater confidence in the information provided and greater comfort in discussing issues with an ESN. They also reported higher rates of satisfaction with the emotional and practical support offered. Thus, it may be concluded that models of care involving the input of ESNs enhance the quality of epilepsy care and care processes. The findings also emphasize the need to have an ESN as part of the multidisciplinary team. •Epilepsy Specialist Nurses (ESNs) address many gaps and unmet needs in the care of people with epilepsy (PWE).•ESNs have a positive impact on PWE’s care experience, satisfaction with care and journey through health care.•ESNs have a positive impact on PWE’s knowledge and skills in self-management.•Models of care involving ESNs show significant promise for improving the quality of epilepsy care and care processes for PWE.