Neuromuscular disorders : NMD, 2017-05, Vol.27 (5), p.428-438
2017
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Details
- Autor(en) / Beteiligte
- Titel
- Disease impact on general well-being and therapeutic expectations of european type II and type III spinal muscular atrophy patients
- Ist Teil von
- Neuromuscular disorders : NMD, 2017-05, Vol.27 (5), p.428-438
- Ort / Verlag
- England: Elsevier B.V
- Erscheinungsjahr
- 2017
- Quelle
- MEDLINE
- Beschreibungen/Notizen
- Highlights • Descriptive analysis of Type II and Type III SMA from a European patients perspective • 837 replies to a survey made by SMA-Europe directly addressed to the targeted population • Focus on disease impact, autonomy, expectations of current therapeutic development • Outstanding result was desire for a stabilization of current clinical state
- Sprache
- Englisch
- Identifikatoren
- ISSN: 0960-8966eISSN: 1873-2364DOI: 10.1016/j.nmd.2017.01.018Titel-ID: cdi_proquest_miscellaneous_1872576119
- Format
- –
- Schlagworte
- Activities of Daily Living, Adolescent, Adult, Aged, Anticipation, Psychological, Attitude to Health, Child, Child, Preschool, Cohort Studies, Cost of Illness, Europe, Humans, Infant, Infant, Newborn, Middle Aged, Neurology, Patient's perspective, Quality of Life - psychology, Spinal Muscular Atrophies of Childhood - epidemiology, Spinal Muscular Atrophies of Childhood - physiopathology, Spinal Muscular Atrophies of Childhood - psychology, Spinal Muscular Atrophies of Childhood - therapy, Spinal muscular atrophy, Survey outcome, Surveys and Questionnaires, Young Adult