Details

Autor(en) / Beteiligte

• Novak, C.
• Lingam, R.
• Coad, J.
• Emond, A.

Titel

'Providing more scaffolding': parenting a child with developmental co-ordination disorder, a hidden disability

Ist Teil von

• Child : care, health & development, 2012-11, Vol.38 (6), p.829-835

Ort / Verlag

Oxford, UK: Blackwell Publishing Ltd

Erscheinungsjahr

2012

Quelle

Applied Social Sciences Index & Abstracts (ASSIA)

Beschreibungen/Notizen

• Background  Few studies exist reporting the experiences of parents of children with developmental co‐ordination disorder (DCD) a common disorder with a prevalence of 1.8–6%. DCD is characterized by poor motor co‐ordination, not caused by a general medical condition, but significantly affecting daily living. This study explores the experiences of parents living with a child with DCD in obtaining a diagnosis; the impact of the diagnosis on parenting and the effect on parents as individuals. Methods  Semi‐structured interviews with a purposive sample of 15 parents of children with DCD data were recorded and then transcribed. Data were analysed using a coding framework and themes identified similar to Attride‐Stirling (2001, Qualitative Research, 1, 385–405). Findings  DCD was an all‐encompassing condition that dominated all aspects of family life and was a ‘hidden disability’. Parents were frustrated by the poor knowledge and expertise of health and education professionals working with children with DCD and the lack of good quality accessible information and support services. Parents became by default the ‘expert’ on DCD for schools and other services; they were advocates for DCD and their own children. They provided additional support for longer to their child with DCD and had concerns for their future. Parenting a child with DCD was frustrating, exhausting, guilt‐ridden as well as rewarding. There was little available time to provide for the needs of other family members. Conclusion  A better‐trained, knowledgeable workforce would redress the balance for families with DCD by providing better information, support and advocacy freeing parents to parent their families.