Details

Autor(en) / Beteiligte

• OECD Publishing
• Oderkirk, Jillian

Titel

Broad and deep data for dementia: Opportunities for care and cure, challenges and next steps

Ist Teil von

• Dementia Research and Care, 2015, p.13-22

Ort / Verlag

Paris: OECD Publishing

Erscheinungsjahr

2015

Quelle

OECD iLibrary

Beschreibungen/Notizen

• The burden of dementia on individuals, families, communities and health care systems is rising globally as world populations age. The Toronto workshop on 14-15 September 2014 identified opportunities and challenges, as well as successful strategies, of sharing and linking the massive amounts of population-based health and health care data that are routinely collected (broad data) with detailed clinical and biological data (deep data) to create an international resource for research, planning, policy-development, and performance improvement. While the potential benefits to dementia cure and care are great, there are significant challenges related to data quality, data sharing and access to data; the protection of privacy; public engagement; and funding and incentives. Moving forward will require active involvement of governments, the research community, the private sector and the public. Next steps could include pursuing the possibility of creating a global centre of excellence to share and promote best practices; developing metrics to compare countries’ performance over time, and conducting pilot studies to demonstrate the value of linking “broad and deep” data to discovering better therapies and improving health care services.