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Patient and Public Involvement and Engagement (PPIE): first steps in the process of the engagement in research projects in Brazil
Ist Teil von
Brazilian journal of medical and biological research, 2022-01, Vol.55 (1), p.1-e12369
Ort / Verlag
Ribeirao Preto: Associacao Brasileira de Divulgacao Cientifica (ABDC)
Erscheinungsjahr
2022
Link zum Volltext
Quelle
EZB Electronic Journals Library
Beschreibungen/Notizen
Patient and Public Involvement and Engagement (PPIE)--sometimes called Community Engagement and Involvement (CEI)--comes as a big challenge but one that can be very helpful for health care professionals and stakeholders in planning better health policies for attending to the main needs of the community. PPIE involves three pillars: public involvement, public engagement, and participation. Public involvement occurs when members of the general population are actively involved in developing the research question, designing, and conducting the research. Public engagement tells people about new studies, why they are important, the impact of results, the possible implication of the main findings for the community, and the possible impact of these new findings in society, as well as, in the dissemination of knowledge to the general population. Participation is being a volunteer in the study. Our experience with PPIE, to the best of our knowledge the first initiative in Brazil, is a partnership with the University of Birmingham, the University of Liverpool, and the NIHR Global Health Group on Atrial Fibrillation (AF) Management focusing on the AF care pathway exploring the important aspects of diagnosis and treatment in the primary care system from a low-middle income area in Sao Paulo. The involvement of patients/public in the research represents a new step in the process of inclusion of all segments of our society based on patient illness and the gaps in knowledge aiming to open new horizons for continuous improvement and better acceptance of research projects. Key words: Patient and Public Involvement and Engagement; First process; Engagements; Research projects