Details

Autor(en) / Beteiligte

• Saifan, Ahmad Rajeh
• Hayeah, Haneen Abu
• Ibrahim, Ateya Megahed
• Dimitri, Alexandra
• Alsaraireh, Mahmoud Mohammad
• Alakash, Hikmat
• Yateem, Nabeel Al
• Zaghamir, Donia Elsaid
• Elshatarat, Rami A
• Subu, Muhammad Arsyad
• Saleh, Zyad Taher
• AbuRuz, Mohannad Eid
• Shimels, Tariku

Titel

Experiences on health-related quality of life of Jordanian patients living with heart failure: A qualitative study

Ist Teil von

• PloS one, 2024-04, Vol.19 (4), p.e0298893-e0298893

Ort / Verlag

United States: Public Library of Science

Erscheinungsjahr

2024

Quelle

MEDLINE

Beschreibungen/Notizen

• Quantitative studies have provided valuable statistical insights into Health-Related Quality of Life (HRQoL) among patients with Heart Failure (HF), yet they often lack the depth to fully capture the nuanced, subjective experiences of living with HF particularly in the specific context of Jordan. This study explores the personal narratives of HF patients to understand the full impact of HF on their daily lives, revealing HRQoL aspects that quantitative metrics often miss. This is crucial in developing regions, where the increasing prevalence of HF intersects with local healthcare practices, cultural views, and patient expectations, providing key insights for tailored interventions and better patient care. Utilizing a phenomenological qualitative design, this study conducted face-to-face semi-structured interviews with 25 HF patients to deeply explore their lived experiences. Thematic analysis was employed to identify major themes related to their perceptions of HF as a disease, its impact on various HRQoL domains, and their recommended strategies to enhance HRQoL. The study involved 25 participants (13 males, 12 females), aged 26-88 years (mean 63), with diverse education and heart failure (HF) severities. It revealed three themes: HF perceptions, its impact on health-related quality of life (HRQoL) across physical, psychosocial, spiritual, cognitive, and economic domains, and HRQoL improvement strategies. Participants had varied HF knowledge; some lacked basic understanding. The physical impact was most significant, affecting daily life and causing symptoms like breathing difficulties, coughing, edema, and fatigue. This physical aspect influenced their psychosocial and spiritual lives, cognitive functions, and economic stability, leading to fear, frustration, worry, social isolation, spiritual and cognitive challenges, and employment problems. The results underscores the need for holistic healthcare approaches, integrating medical, psychological, and social support. Key recommendations include integrated care models, comprehensive patient education, support networks, and policy interventions to enhance HF patient care.